Monday, September 14, 2009

Weeks 8-10



Ok, not a whole lot new and exciting to report. Joey had a pediatrician appt. on Aug 21st and weighed 5lbs 10oz and was 18 1/2 inches long. Her Dr. said she was pretty happy with Joey's growth, she is following the growth rate of a normal baby but on a smaller scale (not sure if I explained it properly). We had been trying to get her to take 2 or 3 oz of milk per feeding but haven't had much luck. It takes her quite a while to get 2 oz in and sometimes she just won't take it!! She has also slowed down on the amount of feedings per day, it used to be every 3 hours, now its 4-5 hours between feeding (unless I want to sleep and then its every hour, but only a little bit at a time). She is also starting to develop colic (oh joy!!) and bouts of constipation. I can only pray that these will pass as she gets older.


Joey had her cardiologist appt on Aug 27th. She was not happy at all about the EKG and was even less happy about the echo. She was fussing and squirming so much it made her heart look more enlarged than it actually is. After she settled down a bit and was taking a short catnap, they re-did the echo and got a better picture. She has Cardiac Hypertrophy (much less severe than the Hypertrophic Cardiomyopathy he thought he originally saw), and there may be a vessel surrounding the trachea which is making it difficult for her to breathe. Doc wants her to have a barium swallow to get a better look at the trachea, the course of action will be determined by the result of the swallow.


We have an appt 9/1 to apply for social security benefits for her, so that should be an adventure. We already applied for Medicaid for Joey and the caseworker (God bless that woman!) put a rush on Joey's app and we should have an approval sometime this week.


We are now down to the last few preemie diapers and I am tempted to keep one (an unused one of course) with her memory box. We are going to try newborn diapers when the preemie's run out, but I'm not sure how they are going to fit her, we shall see!!


And finally, we had a 2 month celebration for Joey, it was wonderful!! It was not a big party but the people that mattered were there, and I couldn't be happier that they were able to share such a special day with us.. So thank you again to those people..We love you..


Well that just about covers the last 2 weeks, if I forgot anything I will come back and update the note.





No comments:

Post a Comment